Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases


Funding Late Onset Research

My name is Phil Rhodes and on 2/11/2014 my sister and I were diagnosed with a rare disease called GM-2 Gangliosidosis (Late Onset Sandhoff Disease).

Sandhoff is a progressive neurological genetic disorder caused by the absence of two vital enzymes, which affects the central nervous system and is deadly in the infantile and juvenile form. It is one of over 50 genetically inherited disorders known as Lysosomal Storage Diseases, and there is NO CURE! After I was diagnosed I made a promise to do all I could to help find a cure.

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