Fundraising Goal: $50,000

In March 2019, my daughter Vayle Rose, who was not even six months old, was diagnosed with Canavan disease, an extremely rare neurological disorder that causes progressive damage to nerve cells in the brain. As a single mom whose only child has a life-threatening disease, my life turned completely upside down. The hopes and dreams I had for her, for us, were shattered, and my life felt like it was over. Since her diagnosis, I strive to give Vayle the best life possible as she fights every single day against this horrible disease.

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(617) 277-4463

Checks payable to NTSAD.

Mailing Address:
2001 Beacon Street
Suite 204
Boston, MA 02135.