In March 2019, just before turning 6 months old, my daughter Vayle Rose was diagnosed with Canavan disease, an extremely rare neurological disorder that causes progressive damage to nerve cells in the brain. As a single mom whose only child has a life-threatening disease, my life turned completely upside down. The hopes and dreams I had for her, for us, were shattered and my life felt like it was over. Since her diagnosis, I have been striving to give Vayle the best life possible as she fights every single day against this horrible disease.
The goal of Vayle's fund is to underwrite Canavan research, family support, and carrier screening.
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Thank you from the bottom of our hearts for your support!