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Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

Folder Family Support Resources

Documents

pdf NTSAD Care Tip G-tubes Handout

74 downloads

Download (pdf, 550 KB)

NTSAD-Care-Tip-G-tubes-handout.pdf

pdf NTSAD Care Tip Range of Motion handout

68 downloads

Download (pdf, 384 KB)

NTSAD-Care-Tip-Range of Motion-handout.pdf

pdf NTSAD Special Siblings Popular

257 downloads

Download (pdf)

Special-Siblings-Booklet-Electronic.pdf

document NTSAD Care Plan Template Popular

731 downloads

Download (docx, 315 KB)

CARE-Plan-template-NTSAD.docx

document NTSAD Late Onset Form Popular

225 downloads

Download (docx, 91 KB)

NTSAD-Adult-Onset-Form.docx

pdf NTSAD Helping Hands Grant Application 2016 Popular

268 downloads

Download (pdf, 98 KB)

NTSAD-HHG-Application.pdf

Helping Hands Grant Application deadline is January 31, 2016

document NTSAD Family Form Popular

324 downloads

Download (docx, 17 KB)

NTSAD-Family-Form-only.docx

Join NTSAD by completing this form and sending it to NTSAD's Director of Family Services at This email address is being protected from spambots. You need JavaScript enabled to view it..

document Helping Hands Raffle Selling Tips Popular

335 downloads

Download (docx, 14 KB)

Helping-Hands-Raffle-Selling-Tips.docx

document NTSAD Helping Hand Grant Application 2014 Popular

277 downloads

Download (doc, 32 KB)

NTSAD-Helping-Hand-Grant-Application_2014.doc

The application for the NTSAD Helping Hand Grant. NTSAD’s Helping Hand Grants were established to assist families and individuals with some of the costs associated with attending the Annual Conference. It is intended to aid families and individuals that are otherwise unable to participate in the Conference.

document NTSAD Facebook Group Guidelines 2014 Popular

254 downloads

Download (docx, 12 KB)

NTSAD-Facebook-Group-Guidelines_2014.docx

The guidelines for the NTSAD Facebook group.

Tay-Sachs, Sandhoff, GM1 and Canavan, in all forms, are devastating diseases that completely change families and lives. By fostering a community of unconditional support and non-judgment for different care choices and perspectives we can share tips, resources and friendship in a safe, supportive and empowering environment.

pdf FILM Professional Order Form Popular

512 downloads

Download (pdf, 84 KB)

FILM-Professional-Order-Form.pdf

A professional order form for:

A Film For Families: 
Parenting a Child with Life‐Limiting Illness  

pdf FILM Professional Film Tool kit Popular

580 downloads

Download (pdf, 429 KB)

FILM-Professional-Film-Tool-kit.pdf

This includes a toolkit for screening with a professional audience.

 

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