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Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

Folder Topic of the Week

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default Topic of the Week - August 7, 2015 Popular

415 downloads

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Topic of the Week - August 7 2015.htm

In this issue:

SWAG items for 5th Annual Day of Hope - T-shirts, bracelets, lunch totes, brochures

Prizes for top 3 fundraisers!

default Topic of the Week - July 13, 2015 Popular

480 downloads

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Topic of the Week - July 13 2015.htm

In this Issue:
Welcome to Our New Officers and Board Members

Brian Manning, President
Blyth Lord, Vice President
Alex Wright, Treasurer
Ruth Feldman, Secretary
Scott Hunger, Director
Sophia Pesotchinsky, Director

Our Thanks to Judith Tsipis

default Topic of the Week - June 19, 2015 Popular

432 downloads

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Topic of the Week - June 19 2015.htm

In this issue:

Taking the Tay Sachs Story to Capitol Hill
By Edward Goldstein, Russell and Brooks' Dad

The Advocacy Tool Belt

  • National Organization for Rare Disorders (NORD)
  • Rare Action Network (RAN)
  • NTSAD Toolkit for Meeting with Your Representatives

default Topic of the Week - May 15, 2015 Popular

439 downloads

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Topic of the Week - May 15 2015.htm

Inside this Issue:

Genetics 101: Inheritance

Be Tested, Be Sure

Did You Know...
NTSAD administers and funds an International Quality Control Tay-Sachs Testing Program?

FAQS
When can I have my healthy children screened to see if they are carriers?
Where should I go to be screened?
I've heard about JScreen; what is it?
What do I do if my insurance won't cover the cost of carrier testing?

 

default Topic of the Week - April 24, 2015 Popular

611 downloads

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Topic of the Week - April 24 2015.htm

A recap of an incredible week at the 2015 NTSAD Annual Conference.

pdf Topic of the Week - December 5, 2014 Popular

420 downloads

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TOW_12-5-14.pdf

Carrier Screening issue featuring Jewish Genetic Disease Consortium and JScreen information. Carrier Risk Chart included.

pdf Topic of the Week - November 21, 2014 Popular

611 downloads

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TOW_11-21-14.pdf

Making Your Mark and Making a Difference - Advocacy announcements

pdf Topic of the Week - October 31, 2014 Popular

532 downloads

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TOW_10-31-14.pdf

Having a safe and fun Halloween with flu season precautions.

default Topic of the Week - October 3, 2014 Popular

1492 downloads

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Topic of the Week - October 3, 2014.html

Information about Late Onset Tay-Sachs and Late Onset Sandhoff diseases and highlights of two Late Onset members.

pdf 8 30 13 TOW Affordable CC Act Popular

422 downloads

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8-30-13_TOW_AffordableCC-Act.pdf

This article introduces the topic of the week, the patient protection and the affordable care act.

pdf TOW Research Review PDF version 2012 13 Popular

378 downloads

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TOW-Research-Review-PDF-version-2012-13.pdf

A NTSAD research overview, and the 2012-2013 highlights.

pdf 8 16 13 TOW Sibling Scholarship Popular

371 downloads

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8-16-13_TOW_Sibling Scholarship.pdf

This article includes the topic of the week, sibling scholarships.

pdf 8 23 13 TOW Research Review Popular

383 downloads

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8-23-13_TOW_Research Review.pdf

This article introduces the topic of the week, developing a rapid screening method to identify potential drugs for metachromatic leukodystropy (a lysosomal disease related to Tay-Sachs).

pdf 8 2 13 TOW In the News Popular

416 downloads

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8-2-13_TOW_In-the-News.pdf

This article includes the topic of the week, families in the news.

pdf 8 9 13 TOW International Families Popular

359 downloads

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8-9-13_TOW_International-Families.pdf

This article includes the topic of the week, international families and news.

pdf Topic of the Week - May 23, 2014 Popular

457 downloads

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TOW_5-23-14_Corporate-Advisory-Council.pdf

Image Topic of the Week - May 9, 2014 Popular

457 downloads

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Mother's Day, Dragon Style.html

Mother's Day Reflections

 

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