Our families' daily struggles drive us to extend our leadership in, and financial support of, the research that will ultimately lead to a cure. Now more than ever, the potential exists to advance science toward effective treatments.
Funding Innovative Research
NTSAD launched the NTSAD Research Initiative in 2002 to focus on funding promising innovative research for neurodegenerative diseases that affect the central nervous system. We fund promising research that may lead to major grant support and programs that will hopefully lead to clinical trials.
NTSAD's grants are sometimes made in collaboration with partners such as the NIH and other patient advocacy groups for the allied diseases.
- Fifty-three grants were awarded from 2002-2016 (view .pdf Funded Research Projects 2002-2015)
- 13 grants (Funded Research Projects excluding LSDRC) through the Lysosomal Storage Disease Research Consortium.
These grants have led to NIH grants of more than $10 million toward finding treatments and cures!
Advanced Research through TSGTC
The Tay-Sachs Gene Therapy Consortium (TSCTC) is the most advanced research program and holds tremendous potential as they get closer to initiating a human clinical trial.
We can only fund research with the generous financial support of our families, affiliates and chapters. We encourage you to support this research by making a gift.
Scientific Advisory Committee
NTSAD works with The Scientific Advisory Committee (SAC), comprised of world-leading experts in lysosomal and leukodystrophy disease research and clinical care. Their fields of expertise include neurology, genetics, biomedical research, laboratory medicine and genetic counseling.