Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

How can I get involved?

There are many ways to contribute to research. Whenever we learn about a new and appropriate study that is recruiting patients, we update the list below. Participating in research is a personal decision, and not one which every family feels is right for them. If you are considering participating in a research study, you are welcome to call NTSAD to discuss the benefits and risks. 


Studies Recruiting Patients

Funding Research

family raising funds with a bake saleYou do not have to participate in a study to be involved with research. Raising money for research is a vital way for research to continue moving forward.

Tissue Donation

If a loved one has passed away and you would like to help research progress to help others fight the disease, you may consider tissue donation. This is a private and personal decision.