Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases


Are we close to a cure?

NTSAD is dedicated to finding a cure for Tay-Sachs, Sandhoff, Canavan, GM-1 and all the related diseases. Founded over 50 years ago, NTSAD has been at the forefront of advancing and supporting breakthrough research through the NTSAD Research Initiative and collaborative programs.

This is a very exciting time in Tay-Sachs and related diseases research. The Tay-Sachs Gene Therapy Consortium program has already shown excellent results in animal models and is driving toward initiating human clinical trials.

For Families

An Introduction to Research

Tay Sachs Research

GM-1 Research

Canavan Research

Sandhoff Research

How Can I Get Involved?

NTSAD and Research

Studies Recruiting Patients


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Recent issues:

pdf 2016 December NTSAD's Monthly Research Review (170 KB)

pdf 2016 October Research Review (681 KB)

pdf 2016 September Research Review (356 KB)

pdf 2016 July Research Review (248 KB)

pdf 2016 June Research Review (249 KB)

pdf 2016 May Research Review Part II (273 KB)

pdf 2016 May Research Review Part I (281 KB)

2016 April NTSAD Research Review

2016 March NTSAD Research Review

2016 February NTSAD Research Review

pdf 2016 January Research Review (388 KB)