Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

Meet the Families

Families of the NTSAD Peer Support Group have provided photographs and web site links in honor of their loved ones who has been diagnosed with an allied disease. If you would like to contribute a photograph and link, please contact Diana Pangonis, This email address is being protected from spambots. You need JavaScript enabled to view it..

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  • Meet Mallory

    Mallory is seven years old and has Juvenile Tay-Sachs disease. Four years ago, she could walk with assistance, say a few words and her eyes sparkled. Now, everyone that meets her is stunned by her quiet beauty, peaceful spirit and gorgeous hair. Please give today in Mallory's honor so the sparkle shines for families and their children in the years to come.
  • Meet Xavier.

    His quiet spirit defies the aggressive nature of the Juvenile Tay-Sachs that is robbing him of his childhood and future. As one of five children, Xavier increasing needs are overwhelming for his parents. NTSAD's resources give them respite and reassurance as they cope day-to-day. Give today and help NTSAD provide services to families like Xavier's.
  • Meet Danielle.

    Danielle is a girl's girl. Her hair is done, her nails are polished and she loves Katy Perry! However, one difference is that she has Canavan disease. Sadly, Danielle will never know independence, but it will not keep her from enjoying the love of her family and the sounds of music. Consider a gift today and keep the beat going for kids like Danielle who are affected by Canavan and related diseases.


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