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Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

Benton's Family Assistance Fund

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Ian and Marie Auerbach established Benton's Family Assistance Fund within NTSAD to honor their son, Benton, who passed away from Tay-Sachs in January, 2012, at the age of 3. They started this fund to provide financial assistance to families and affected individuals to purchase items and services that promote comfort, ease, and quality of life for their loved ones. Similar to Helping Hand Grants, grants from Benton's Family Assistance Fund will aid families and individuals that are otherwise unable to afford these very helpful services.

 

 

 

Eligibility

  • NTSAD Peer Support Group members
  • Family member taking care of a child
  • Affected adults & their caregivers 

 

Examples of what's covered in the Fund:

  • strollers
  • equipment that helps increase comfort (e.g,. positioning equipment for children) but isn't covered by medical insurance
  • durable medical equipment co-pay
  • short-term respite or nursing care
  • complimentary medicine, e.g., occupational therapy, Eastern medicine approaches

 

Guideline for amount requested: The maximum request should be $500 per year for each family. However, the amount ultimately granted and the item approved will be at the discretion of the grant review committee.

 

How to apply

 

To apply for a grant, please submit your request and include the description, dollar amount, and the reason for your request. Once you are awarded the grant, you will be asked to submit documentation for the item/service per NTSAD's audit requirements.

 

Please send your request to:

 

NTSAD - Benton's Family Assistance Fund

2001 Beacon Street, Suite 204

Boston, MA 02135

This email address is being protected from spambots. You need JavaScript enabled to view it.

f. (617) 277-0134

 

Donate to the Benton Family fund

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