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Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Tay-Sachs, Sandhoff and GM1 Late Onset Support

Support for Families

Families dealing with adult Late Onset Tay-Sachs, Sandhoff or GM1 gangliosidosis disease, known as Lysosomal Storage Diseases, have common symptoms and common approaches for managing the symptoms.  Read through this section to learn about various symptom management techniques, where to find help, and how to cope.

Newly Diagnosed

Communication Skills

Swallowing Difficulties



Mental Health


Technology Resources

Family Information Packet

NTSAD offers a free information packet that includes materials on;

  • symptom management
  • research updates
  • how to cope

Request it today by completing our online request form: Contact Us.