Leading the worldwide fight to treat and cure
Tay-Sachs, Canavan, GM1 and Sandhoff diseases

Support for Families

If your family is affected by a rare genetic disorder, you are not alone. NTSAD is here to help with resources that can help from the day of diagnosis through day-to-day care, tough end-of-life decisions and beyond. With an incredible network of families ready to offer advice and share their experiences to an unforgettable annual family conference, NTSAD is there for families and individuals coping with these diseases.
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  • Access resources while you care for your child while coping with a diagnosis of Canavan, GM1 Gangliosidosis, Sandhoff and Tay-Sachs (GM2 Gangliosidosis).
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  • Access the resources and the information you may need while coping with a diagnosis of Late Onset GM1, Sandhoff or Tay-Sachs (GM2). You are not alone.
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  • We know you may have many questions and want to know all the answers all at once. Here are a few resources that may help you tackle them one by one. Remember - we're here to help.
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  • The Annual Conference is an invaluable experience. All families living with Canavan, GM1, Sandhoff or Tay-Sachs, infantile, juvenile or late onset are welcome. We're a small but mighty group when we're together.
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  • Having a brother or sister with Canavan, GM1, Sandhoff and Tay-Sachs or a related disease can be hard, confusing and overwhelming. We hope the resources here offer support that's unique to you as a rare sibling no matter your age.
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  • Receive the latest news in research and clinical trials, ways to keep moving research forward, resources that may help with caregiving, self-care, being mindful of siblings, remembering loved ones lost and celebrating the births.
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