Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

2019 Imagine & Believe

Wednesday, October 30, 2019

6-9 pm
Royal Sonesta Hotel 
40 Edwin Land Blvd
Cambridge, MA
Dinner | Auction | Program

Join our generous sponsors and attendees here to support NTSAD. 

If you cannot make it to the event but would like to make a gift to support NTSAD, please click here.
For 62 years, NTSAD has been bringing together leaders in the rare disease community to share, learn, network, and collaborate with families, researchers, clinicians and friends. NTSAD’s annual Imagine & Believe is a vital part of this effort.

Through Imagine & Believe we:

  • Connect affected families with leaders in research, biotech, medicine, and clinical pursuits with a goal of learning from the past, discussing the state of rare diseases, and building partnerships for the future
  • Raise money to fund research, promote and steward these partnerships, and serve our families.
  • Bring toghether families, Board members, and attendees who are very well networked in the Boston biotech community, especially in rare diseases. Among them are industry partners, researchers, and clinicians. 

Join us in honoring Cynthia Tifft, MD, PhD, Deputy Clinical Director of the National Human Genome Research  Institute/NIH. A trusted partner and advisor to NTSAD since 1998, Dr. Cynthia Tifft is an accomplished clinician  and scientist, and an extraordinary advocate for the  rare disease community.  Always prioritizing the  children and adults for whom she cares, Dr. Tifft has  led an almost 20-year long natural history study for  storage disorders laying essential groundwork for  clinical trials. Dr. Tifft is the Principal Investigator for  a newly opened GM1 gangliosidosis Type II gene therapy clinical trial, a career milestone.

Silent Auction

Take a peek at our Silent Auction Wish List offerings here to purchase and contribute an item!

Sponsorship

Join our generous sponsors here to support NTSAD.

Donate 

If you cannot make it to the event but would like to make a gift to support NTSAD, please click here.

 

 

 

 

 

How to Support

To sponsor Imagine & Believe 2019, view tickets, and see ad prices,
please follow this link.

Or download the form here.

For more information or questions, please email Patrick Woods, Director of Development, here.

 

2019 Sponsors

Believe Sponsor

Axovant Gene Therapies

Hope Sponsors

Aspa Therapeutics
Cydan

Inspiration Sponsors

Amicus Therapeutics
Audentes
Gerry Cox, MD, PhD
and Cindy Lemere, PhD
Jayne and Bruce Gershkowitz
Joan and Tim Keutzer

Lysogene
Passage Bio
Trinity
UMass Medical School

Determination Sponsors

Acom Healthcare
Adelman Associates

Azafaros
bluebird bio
Alexis Buryk
Centogene
Ruth and Ed Feldman
Gain Therapeutics
Idorsia
Staci Kallish and Chris Beer
Blyth and Charles Lord
Orchard Therapeutics
Retrophin
Retrotope
Mathew Forbes Romer Foundation
Spark Therapeutics
Speak Life Science
UniQure

 

 

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