Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

Celebrating Emma


Love planted a rose,
and the world turned sweet.

- Katharine Lee Bates


Honor Emma's Life Today
and Help Families Tomorrow

 Donate Here


Emma Madison Artinian was born April 17, 2012 in Chapel Hill, NC but lived most of her life in Queens, NY.  She was always a stubborn girl starting with her arriving 2 weeks after her due date.  She lived her life with Sandhoff Disease but the disease did not define her. We made every effort to give her the most complete life that we could and lived every day to the fullest. She loved The Little Mermaid, Irish music, swimming, the beach, swinging at the park, fishing at the lake and attending baseball games. She never lit up quite the way she did as when the wind would blow in her face.  

For a three and a half year old, Emma had an incredible impact. She taught everyone around her so much about life and love and forever changed many people’s lives for the better.  No matter what was going on in your life, as soon as you had Emma in your arms you felt at peace. She brought out so much love and happiness and brought our family together to support each other and celebrate the beauty of her life.

Our hope is that some day there will be a cure for these diseases so other families do not need to know the heartbreak that accompanies these diseases.  Please honor Emma’s memory and donate today!


Hope for Emma