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Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

NTSAD Care Tips Series

The goal of this series is to document and capture information that relates to the family experience in all its forms (caring for a child, grief, living with the adult onset forms) and the symptom and care management involved. These videos allow families, supporters and healthcare professionals worldwide to have access to information that may not be readily available to them in their area. An imperative goal of this series is to relieve the isolation brought on by these rare diseases.

To translate these videos:

Settings > Select Subtitles: English > Go back to Subtitles: Auto-translate > Select language

The translation will appear as subtitles albeit roughly translated.

Share your thoughts

We'd love to hear your feedback, suggestions and other ideas about this series. Fill out this form here and we'll take it all into consideration! There is always room to improve and we want to be sure we're offering all we can. 

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Support Resources

New Family Packet
Request it today by completing our online request form: Contact Us

Benton's Family Assistance Fund
Learn more here about how this fund helps families.

Care Plan Template
Download   documenthere(315 KB) .

Courageous Parents Network (CPN)
www.courageousparentsnetwork.org

Emma's Fund for Families
Learn more here about how this fund helps families create memories.

Rare Siblings Project
www.raresiblingsproject.org

The Quinn Madeline Foundation
Awareness for hope. Memories for life.
www.quinnmadeleine.org

Learn more here.

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