Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

Be a Rare GENEius

What does it mean to be a Rare GENEius?

By supporting families through a peer network, funding research in hope of a treatment, educating communities through grassroots partnerships and advocating for families and individuals with disabilities, we can empower people living with rare genetic diseases such as Tay-Sachs, Sandhoff, GM-1 and Canavan.

We must work to share our strength to enhance everyone’s ability to cope, provide hope, and raise awareness in populations all over the world. Being a rare GENEius is about education, science, empowerment, sharing #rareGENEius strength and prevention.

How can you be a Rare GENEius?

Make a gift of hope. Ask your friends and family to make a donation.

Donate Today

Share your story and NTSAD updates on social media. Raise awareness about carrier screening and prevention.

Help NTSAD advocate for our rare disease community.