What does it mean to be a Rare GENEius?
By supporting families through a peer network, funding research in hope of a treatment, educating communities through grassroots partnerships and advocating for families and individuals with disabilities, we can empower people living with rare genetic diseases such as Tay-Sachs, Sandhoff, GM-1 and Canavan.
We must work to share our strength to enhance everyone’s ability to cope, provide hope, and raise awareness in populations all over the world. Being a rare GENEius is about education, science, empowerment, sharing #rareGENEius strength and prevention.
How can you be a Rare GENEius?