Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

Mission and Vision


The mission of the National Tay-Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.


We will accomplish our mission by funding global cutting edge research, by helping to provide families with compassionate care and support and by collaborating effectively with the healthcare community to achieve our goals.

The National Tay-Sachs & Allied Diseases Association will:

  • Direct, fund and promote research to develop treatments and cures
  • Provide comprehensive support services to affected families and individuals
  • Guide prevention, education, awareness and screening through effective grassroots collaborations with chapters and affiliates
  • Lead advocacy efforts as the recognized authority for this family of genetic diseases

The related genetic diseases include over 50 lysosomal storage diseases and over 40 leukodystrophies.


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