NTSAD's Affiliates and Chapters have their own programs and help fund research, family support and educational initiatives offered by the national organization.
Delaware Valley Chapter
Mission: The elimination of Tay-Sachs and Canavan diseases through education and screening
Michael J. Ossip, Co-President
Lauri Sussman Siegel, Co-President
Rebecca Tantala, Executive Director
New York Area Chapter
The New York Area chapter of NTSAD has folded into NTSAD however efforts to raise awareness and funds to support NTSAD's mission continues. To learn more, visit New York Area Fund.
Cameron & Hayden Lord Foundation
Mission: (1) Decrease the incidence of chronic and complex childhood diseases, and (2) Increase the quality of emotional, spiritual and medical care for families facing these diseases.
Alison Lord, President
Mathew Forbes Romer Foundation
Mission: Promote and lead critical awareness, testing, counseling and research initiatives that hold promise for the prevention and eventual care of fatal children's genetic diseases of the brain.
Kevin Romer, President