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Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

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Thank you for ordering the NTSAD film Parenting a Child with Life-Limiting Illness.
Please allow two weeks for delivery.

We hope you will consider making a gift to NTSAD to support this and other Family Support programs.

If ever there is a tomorrow when we're not together - there is something you must always remember. You are braver than you believe, stronger than you seem and smarter than you think. But the most important thing is, even if we're apart - ll always be with you.      ~ Christopher Robin to Winnie-the-Pooh

NTSAD Annual Family Conference Helping Hand FAQ

Helping Hand Grants
We have received a grant in the past, can we apply again?
Yes, all families are eligible. But award priority is given to families who received their diagnosis or received their wings in the past year.

Our family needs a grant for all our expenses, is that possible?
Yes, but our goal is to help as many families as possible, so we ask that each family apply for the least amount needed to make it to the conference. This stretches the fund to help as many families as possible.

We live outside the US; are we eligible for a Helping Hand Grant?
Yes, we ask international families to cover their travel and apply for a grant to cover hotel and registration fees.

Helping Hand Raffles
Do I have to sell Helping Hand Raffles to receive a Helping Hand Grant?
No, selling raffles are not required to receive a Helping Hand Grant but greatly appreciated. All proceeds from the Helping Hand Raffle go directly to families in need to help attend the Annual Family Conference. Every dollar raised is needed and greatly appreciated.

Why is the amount of raffles sold to earn a free registration twice the amount of the registration fee?
When you sell $570 worth of raffles, $285 go toward your registration fee and the remaining $285 go into the Helping Hand Fund to help with other families who are not financially able attend.

When should I send in the raffles and money?
Please send raffles and collected donations to the national office as you collect them. We will track your sales and award free registrations. This helps us plan the Helping Hand budget and award as many grants as possible. Please do not send cash; checks or money orders are preferred.
    NTSAD – Helping Hand
    2001 Beacon Street, Suite 204
    Boston, MA 02135

The office will be closed after April 1st so the staff can travel to Atlanta to prepare for the conference. You may bring raffle books and money to the conference for the drawing on April 5th.

When are the prizes awarded?
Winners need not be present to win. Winners (who are not present) are notified of their award by Tuesday, April 8th. The Prize check is mailed to the winner 6 – 8 weeks following the drawing.

Do buyers need to fully complete each raffle stub?
No. Write their information once and the office will do the rest. Correct phone and email are the most helpful when contacting winners.  

I tried but could not sell all 57 books; can I still receive a Helping Hand Grant to cover the registration fees?
Yes! And we greatly appreciate your efforts.

Helping Hand Tool-Kit
Our goal is to help as many families as possible attend the Annual Family Conference. To achieve this goal we work hard to raise the needed funds and ask families to explore the resources below. Together, we can achieve our goals and every family who wants to be at the conference will be able to attend.

Selling Helping Hand Raffles

  • Personalized flyers to post online and in community
  • Facebook badge (profile picture) to promote sales
  • Connect with experienced raffle seller for mentorship and guidance

Contact Kim (details on the right) to request personalized flyers, Facebook badge or raffle mentor.

Click   document here (14 KB)  to download more selling tips.

Raise Your Own Helping Hand
YouCaring is a free fundraising website created for individual wanting to raise funds for a variety of needs, including attending our Annual Family Conference! In just 3 steps, easily create your own site to raise the funds you need to get to the conference. It is truly free, the site does not charge you or the donors.

Explore Your State Resources
Many states offer grant programs directly to families to help with the cost of attending a conference related to the disease impacting the family. These are often difficult to find. Contact the Family Voices chapter in your state to inquire. Family Voices is an amazing organization connecting medically complicated families in each state.

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