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Latest News
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Executive Leadership Transition
After 14 years, Sue Kahn plans to step down. Read a letter from Sue and learn more about the position. Read More -
Kathleen M. Flynn NTSAD's new CEO
Kathleen started at NTSAD this November. Read the press release. Read More -
Make the Rare Diagnosis
Raising awareness about the importance of earlier diagnosis for Canavan, GM1, Sandhoff and Tay-Sachs. Read More
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NTSAD leads the worldwide fight to treat and cure Tay-Sachs, Canavan, GM1, and Sandhoff diseases by driving research, forging collaboration, and fostering community. Supporting families is the center of everything we do.
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