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Leading the Fight
to treat and cure Tay-Sachs, Canavan and related diseasesdonate button

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Volunteer

NTSAD relies on volunteers to help spread the word and raise awareness.

With the exception of our small staff, everyone involved with NTSAD, including its Board of Directors and Committee members, generously give their time, energy and talents to NTSAD for free so we can spend less on administrative costs and more on raising awareness and finding a cure.

Come join our growing team of passionate volunteers!

Ways You can Help!

Join one of NTSAD’s committees and have a voice in what the organization does next.

Annual Family Conference Committee

Support the Conference VP and Member Services Director while planning the Annual Family Conference.

Development Committee

Share your ideas on how NTSAD can succeed in raising funds for research, family support and the overall health of the organization.

Family Services Committee

Be there for families and individuals when they come to NTSAD for guidance and support.

Research Initiative Committee

Work with a stellar group of members and get involved with the exciting progress on the research front.

If you want to contribute in other ways and volunteer your time and expertise, contact the national office at (800) 906-8723.

Get Involved

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Contact

National Tay-Sachs & Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135

info@ntsad.org
800-906-8723 phone
617-277-0134 fax

Volunteer Conference Committee

Bonnie Davis and Susan Finkelstein

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The Diseases

Tay Sachs
Canavan
Sandhoff
GM-1
Other

Leukodystrophies
Lysosomal Storage
Allied Diseases
About Inheritance

Find Support

Annual Family Conference
Become a Member
Free Info Packet
Meet the Families
Register for Research

Infantile & Juvenile
Tay-Sachs, Canavan, Sandhoff, GM-1

Newly Diagnosed
What to Expect
Symptom Management
Special Equipment
Services
Palliative & Hospice Care
Making Memories
Coping
Ways to Help
Grief
Preparing for the Unthinkable

Late Onset
Tay-Sachs, Sandhoff, GM-1

Newly Diagnosed
Communication Skills
Swallowing Difficulties
Employment
Housing
Mental Health
Mobility

Research

Potential Therapies
Overview
Gene Therapy
Stem Cell
Pharmacological Chaperone
Substrate Inhibition
Enzyme Replacement
Bone Marrow Transplant
Stop-Codon Read Through
Acetate Supplement
Biomarkers
Natural History Study
Evaluating Experimental Therapies

Research We Fund
The Research Initiative
NTSAD Research Strategy
Journey to a Cure
Tay-Sachs Gene Therapy Consortium
2011 Grants
2010 Grants
Past Grants
Lysosomal Storage Disease
Research Consortium


Apply for a Grant
Clinical Trials
Scientific Meetings
Donating Tissue

Help Prevent

Carrier Testing
Types of Screening
Jewish Diseases
Tay-Sachs Disease
Prenatal
Screening Centers
Insurance
Education
Family Planning
Genetic Counseling
International Quality Control Program

Get Involved

Donate
Make a Gift
Events
Fundraising Ideas
Volunteer
Advocate
Raise Awareness
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