follow

Leading the Fight to treat and cure
Tay-Sachs, Canavan and related diseases

Donating Tissue for Research

Tissue donation is an extremely personal and private decision. The donation of brain and other tissues is a precious gift that helps to advance meaningful research to find a cure. Donating tissue does not interfere with open casket viewing.  There is no financial cost to the family, and the family can reconsider the decision at any time.

To learn more please contact our director of family services, Kim Kubilus at This email address is being protected from spambots. You need JavaScript enabled to view it. or 800.906.8723 or either of these organizations:

Brain and Tissue Bank for Developmental Disorders
University of Maryland Dept. of Pediatrics
655 West Baltimore Street, 10-035 BRB
Baltimore, MD  21201-1559
Tel: 800-847-1539
Fax: 410-706-0020
This email address is being protected from spambots. You need JavaScript enabled to view it.
http://www.btbank.org

National Disease Research Interchange
1628 JFK Blvd.
8 Penn Cntr. 8th floor
Philadelphia,  PA  19103
Tel: 215-557-7361 800-222-NDRI (6374)
Fax: 215-557-7154
This email address is being protected from spambots. You need JavaScript enabled to view it.
http://www.ndriresource.org

 

Enter your email to receive NTSAD's Topic of the Week or quarterly news.