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Leading the Fight
to treat and cure Tay-Sachs, Canavan and related diseasesdonate button

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Donating Tissue for Research

Tissue donation is an extremely personal and private decision. The donation of brain and other tissues is a precious gift that helps to advance meaningful research to find a cure. Donating tissue does not interfere with open casket viewing.  There is no financial cost to the family, and the family can reconsider the decision at any time.

To learn more please contact our director of family services, Kim Kubilus at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or 800.906.8723 or either of these organizations:

Brain and Tissue Bank for Developmental Disorders
University of Maryland Dept. of Pediatrics
655 West Baltimore Street, 10-035 BRB
Baltimore,  MD  21201-1559
Tel: 800-847-1539
Fax: 410-706-0020
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
http://www.btbank.org

National Disease Research Interchange
1628 JFK Blvd.
8 Penn Cntr. 8th floor
Philadelphia,  PA  19103
Tel: 215-557-7361 800-222-NDRI (6374)
Fax: 215-557-7154
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
http://www.ndriresource.org

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National Tay-Sachs & Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135

info@ntsad.org
800-906-8723 phone
617-277-0134 fax

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The Diseases

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