
Tissue donation is an extremely personal and private decision. The donation of brain and other tissues is a precious gift that helps to advance meaningful research to find a cure. Donating tissue does not interfere with open casket viewing. There is no financial cost to the family, and the family can reconsider the decision at any time.
To learn more please contact our director of family services, Kim Kubilus at
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or 800.906.8723 or either of these organizations:
Brain and Tissue Bank for Developmental Disorders
University of Maryland Dept. of Pediatrics
655 West Baltimore Street, 10-035 BRB
Baltimore, MD 21201-1559
Tel: 800-847-1539
Fax: 410-706-0020
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http://www.btbank.org
National Disease Research Interchange
1628 JFK Blvd.
8 Penn Cntr. 8th floor
Philadelphia, PA 19103
Tel: 215-557-7361 800-222-NDRI (6374)
Fax: 215-557-7154
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http://www.ndriresource.org
National Tay-Sachs & Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135
info@ntsad.org
800-906-8723 phone
617-277-0134 fax
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