Leading the Fight to treatand cure Tay-Sachs, Canavan and related diseases
I or someone I love has just been diagnosed with Late Onset (LOTS) Tay-Sachs, Sandhoff or GM-1, now what?
Take a deep breath and know that you’ve come to the right place. You’ve likely been on a long road to diagnosis and you finally have an answer, but now what? We understand! NTSAD is dedicated to Finding a Cure & Caring for Families.
We can help you:
National Tay-Sachs & Allied Diseases Association2001 Beacon StreetSuite 204Boston, MA 02135
email@example.com(617) 277-4463 phone(617) 277-0134 fax
Director of Family Services
My name is Kim Kubilus and I am available to help you in any way I can. I lost two brothers to a lysosomal disease related to Tay-Sachs. If I can help ease the heartache of another, then maybe my family’s loss was not in vain.
Please feel free to contact me anytime with any question or just to talk. I may not know the answer but I’ll do my best to find it. My email is Kim@ntsad.org or 800.906.8723.
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