As a progressive and unpredictable disease, Late Onset Tay-Sachs, Sandhoff or GM-1can have varying affects on your ability to work. Exploring employment options and making decisions about your career are some of the most important things to consider as you are planning your future.
Reasonable Accommodations
To Tell or Not to Tell
Changing Career Path, if necessary
Understanding the legal protections available to you is one way to help you maintain your place in the workforce.
ADA, a law that protects against discrimination
FMLA, job-protected time off work
HIPPA, pre-existing conditions and insurance
COBRA, buy into health insurance if leaving your job
National Tay-Sachs & Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135
info@ntsad.org
800-906-8723 phone
617-277-0134 fax
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