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Leading the Fight
to treat and cure Tay-Sachs, Canavan and related diseasesdonate button

The DiseasesFind SupportResearchHelp PreventGet Involved

Employment

LOTS and The Workplace

As a progressive and unpredictable disease, Late Onset Tay-Sachs, Sandhoff or GM-1can have varying affects on your ability to work. Exploring employment options and making decisions about your career are some of the most important things to consider as you are planning your future.

Workplace Options

Reasonable Accommodations
To Tell or Not to Tell
Changing Career Path, if necessary

Know Your Rights

Understanding the legal protections available to you is one way to help you maintain your place in the workforce.

ADA, a law that protects against discrimination
FMLA, job-protected time off work
HIPPA, pre-existing conditions and insurance
COBRA, buy into health insurance if leaving your job

Late Onset Support

  • Tay-Sachs, Sandhoff & GM-1
    • Newly Diagnosed
      • First Steps
      • Free Info Packet
      • Become a Member
    • Communication Skills
    • Swallowing Difficulties
      • Swallowing Process
      • Dysphagia
      • SLP Assistance
      • Tips for Swallowing
    • Employment
    • Housing
      • Independent Living
    • Mental Health
    • Mobility
  • Infantile & Juvenile Support
  • Meet the Families

Contact

National Tay-Sachs & Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135

info@ntsad.org
800-906-8723 phone
617-277-0134 fax

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The Diseases

Tay Sachs
Canavan
Sandhoff
GM-1
Other

Leukodystrophies
Lysosomal Storage
Allied Diseases
About Inheritance

Find Support

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Infantile & Juvenile
Tay-Sachs, Canavan, Sandhoff, GM-1

Newly Diagnosed
What to Expect
Symptom Management
Special Equipment
Services
Palliative & Hospice Care
Making Memories
Coping
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Grief
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Late Onset
Tay-Sachs, Sandhoff, GM-1

Newly Diagnosed
Communication Skills
Swallowing Difficulties
Employment
Housing
Mental Health
Mobility

Research

Potential Therapies
Overview
Gene Therapy
Stem Cell
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Substrate Inhibition
Enzyme Replacement
Bone Marrow Transplant
Stop-Codon Read Through
Acetate Supplement
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Research We Fund
The Research Initiative
NTSAD Research Strategy
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Tay-Sachs Gene Therapy Consortium
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Lysosomal Storage Disease
Research Consortium


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