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Tay-Sachs, Sandhoff and GM-1 Late Onset Support

Families dealing with Late Onset Tay-Sachs, Sandhoff or GM-1 disease, known as Lysosomal Storage Diseases, have common symptoms and common approaches for managing the symptoms.  Read through this section to learn about various symptom management techniques, where to find help, and how to cope.

Newly Diagnosed

Communication Skills

Swallowing Difficulties

Employment

Housing

Mental Health

Mobility

Late Onset Support

  • Tay-Sachs, Sandhoff & GM-1
    • Newly Diagnosed
      • First Steps
      • Free Info Packet
      • Become a Member
    • Communication Skills
    • Swallowing Difficulties
      • Swallowing Process
      • Dysphagia
      • SLP Assistance
      • Tips for Swallowing
    • Employment
    • Housing
      • Independent Living
    • Mental Health
    • Mobility
  • Infantile & Juvenile Support
  • Meet the Families

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The Diseases

Tay Sachs
Canavan
Sandhoff
GM-1
Other

Leukodystrophies
Lysosomal Storage
Allied Diseases
About Inheritance

Find Support

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Infantile & Juvenile
Tay-Sachs, Canavan, Sandhoff, GM-1

Newly Diagnosed
What to Expect
Symptom Management
Special Equipment
Services
Palliative & Hospice Care
Making Memories
Coping
Ways to Help
Grief
Preparing for the Unthinkable

Late Onset
Tay-Sachs, Sandhoff, GM-1

Newly Diagnosed
Communication Skills
Swallowing Difficulties
Employment
Housing
Mental Health
Mobility

Research

Potential Therapies
Overview
Gene Therapy
Stem Cell
Pharmacological Chaperone
Substrate Inhibition
Enzyme Replacement
Bone Marrow Transplant
Stop-Codon Read Through
Acetate Supplement
Biomarkers
Natural History Study
Evaluating Experimental Therapies

Research We Fund
The Research Initiative
NTSAD Research Strategy
Journey to a Cure
Tay-Sachs Gene Therapy Consortium
2011 Grants
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Lysosomal Storage Disease
Research Consortium


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Carrier Testing
Types of Screening
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Screening Centers
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International Quality Control Program

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