Sue Kahn joined NTSAD as Executive Director in September, 2007. Sue first learned about NTSAD while at Genzyme Genetics, where prior to NTSAD, she was Senior Director of Business Development. Sue is responsible for the strategic vision for NTSAD and for day-to-day management. She has been focusing on NTSAD’s research goals by updating the research strategy and collaborating with academia and biotech. To reach Sue, email her at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .
Kim Kubilus is the Member Services Director of NTSAD. She is the primary contact for the NTSAD Peer Support Group (PSG) members and handles all inquiries regarding newly diagnosed families and individuals, and works on the newsletters for PSG members. Other responsibilities include handling inquiries about carrier screening, educational outreach and advocating for legislative issues important to NTSAD. To reach Kim, email her at
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Diana Pangonis is NTSAD’s Development Manager. She joined NTSAD in December 1995. Since then she has held the positions of Development Associate, Family Services Coordinator, Interim Executive Director, and currently focuses on development and communications. To reach Diana, email her at
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Ingrid Miller joined NTSAD as Development and Administrative Assistant in 2009. Her primary areas of responsibility are gift processing and acknowledgement, and database maintenance. Prior to working at NTSAD, Ingrid worked at Quota, an international social service group based in Washington, DC.
To reach Ingrid, email her at
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