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Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

News Articles

  • 2014 Imagine & Believe +

    Join us on Thursday, November 13, 2014 at the Royal Sonesta Hotel in Cambridge. Imagine & Believe with us for an inspiring evening to benefit NTSAD, our families and research. Read More
  • Katie & Allie Buryk Research Fund +

    Funding Late Onset Tay-Sachs Research After being diagnosed with Late Onset Tay-Sachs disease, Katie Buryk and her family established a fund to raise money for research for a cure. It Read More
  • Donors to the Katie & Allie Buryk Research Fund +

    Total Raised $156,962 December 2014 - May 18, 2015 Thank you to the many generous donors, supporting the cause to find a cure for Tay-Sachs Disease. Read more about the Katie Read More
  • NY Times: Challenge Describes Late Onset Tay-Sachs +

    On May 7, 2015 the New York Times Well blog, Think Like a Doctor, presents the symptoms reported by twin sisters, Katie and Allie Buryk. Readers are asked to figure Read More
  • Industry Leaders Recruited for Advisory Council +

    National Tay Sachs & Allied Diseases Recruits Industry Leaders for Advisory Council Boston, MA—January 30, 2015--National Tay-Sachs & Allied Diseases, the nation’s oldest rare disease patient advocacy group, is intensifying Read More
  • 2015 Family Conference +

    NTSAD's 37th Annual Family Conference Thursday, April 16th to Sunday, April 19th, 2015 Hyatt Regency Reston 1800 Presidents Street Reston, Virginia Reston is a suburb in Northern Virginia in close Read More
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NTSAD In The News

Boston Business Journal - 'This disease takes away everything': One family's story of Tay-Sachs
Published: February 27, 2015. The first clue that something might be wrong with Cameron was, oddly enough, a diagnosis of Tay-Sachs disease in her cousin.

Boston Business Journal - With the help of patient groups, biotechs hone in on rare diseases
Published: February 26, 2015. Shire Pharmaceuticals made its name developing drugs for osteoporosis, Alzheimer's disease and attention deficit hyperactivity disorder, but its future lies firmly in treatments for rare diseases.

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