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Leading the Fight to treat and cure
Tay-Sachs, Canavan and related diseases

News Articles

  • Donors to the Katie & Allie Buryk Research Fund +

    Total Raised $153,189 December 2014 - April 23, 2015 Thank you to the many generous donors, supporting the cause to find a cure for Tay-Sachs Disease. Read more about the Katie Read More
  • Katie & Allie Buryk Research Fund +

    Funding Late Onset Tay-Sachs Research After being diagnosed with Late Onset Tay-Sachs disease, Katie Buryk and her family established a fund to raise money for research for a cure. It Read More
  • Industry Leaders Recruited for Advisory Council +

    National Tay Sachs & Allied Diseases Recruits Industry Leaders for Advisory Council Boston, MA—January 30, 2015--National Tay-Sachs & Allied Diseases, the nation’s oldest rare disease patient advocacy group, is intensifying Read More
  • 2015 Family Conference +

    NTSAD's 37th Annual Family Conference Thursday, April 16th to Sunday, April 19th, 2015 Hyatt Regency Reston 1800 Presidents Street Reston, Virginia Reston is a suburb in Northern Virginia in close Read More
  • NTSAD New York Area Chapter Transitions Administration to NTSAD +

    The NTSAD New York Area chapter on June 30th transferred its administrative operations to the national office of NTSAD. The work of the chapter will continue in the Tri-state area Read More
  • 2014 Day of Hope +

    Bringing Communities Together This Annual "Day of Hope" Event to Fund Research brings NTSAD families and their communities together for one day every September. From California to England, hope is Read More
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NTSAD In The News

Boston Business Journal - 'This disease takes away everything': One family's story of Tay-Sachs
Published: February 27, 2015. The first clue that something might be wrong with Cameron was, oddly enough, a diagnosis of Tay-Sachs disease in her cousin.

Boston Business Journal - With the help of patient groups, biotechs hone in on rare diseases
Published: February 26, 2015. Shire Pharmaceuticals made its name developing drugs for osteoporosis, Alzheimer's disease and attention deficit hyperactivity disorder, but its future lies firmly in treatments for rare diseases.

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