Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases

News Articles

  • 2014 Imagine & Believe +

    Join us on Thursday, November 13, 2014 at the Royal Sonesta Hotel in Cambridge. Imagine & Believe with us for an inspiring evening to benefit NTSAD, our families and research. Read More
  • Katie & Allie Buryk Research Fund +

    Funding Late Onset Tay-Sachs Research After being diagnosed with Late Onset Tay-Sachs disease, Katie Buryk and her family established a fund to raise money for research for a cure. It Read More
  • Donors to the Katie & Allie Buryk Research Fund +

    Total Raised $156,962 December 2014 - May 18, 2015 Thank you to the many generous donors, supporting the cause to find a cure for Tay-Sachs Disease. Read more about the Katie Read More
  • NY Times: Challenge Describes Late Onset Tay-Sachs +

    On May 7, 2015 the New York Times Well blog, Think Like a Doctor, presents the symptoms reported by twin sisters, Katie and Allie Buryk. Readers are asked to figure Read More
  • Industry Leaders Recruited for Advisory Council +

    National Tay Sachs & Allied Diseases Recruits Industry Leaders for Advisory Council Boston, MA—January 30, 2015--National Tay-Sachs & Allied Diseases, the nation’s oldest rare disease patient advocacy group, is intensifying Read More
  • 2015 Family Conference +

    NTSAD's 37th Annual Family Conference Thursday, April 16th to Sunday, April 19th, 2015 Hyatt Regency Reston 1800 Presidents Street Reston, Virginia Reston is a suburb in Northern Virginia in close Read More
  • 1
  • 2

NTSAD In The News

Boston Business Journal - 'This disease takes away everything': One family's story of Tay-Sachs
Published: February 27, 2015. The first clue that something might be wrong with Cameron was, oddly enough, a diagnosis of Tay-Sachs disease in her cousin.

Boston Business Journal - With the help of patient groups, biotechs hone in on rare diseases
Published: February 26, 2015. Shire Pharmaceuticals made its name developing drugs for osteoporosis, Alzheimer's disease and attention deficit hyperactivity disorder, but its future lies firmly in treatments for rare diseases.

Back Issues

Visit our library of eNews for copies of past newsletters, research updates, topics of the week and more

News Feeds

Browse a collection of recent new articles collected around the Internet. View News Feeds

Sign up for News


Enter your email to receive NTSAD's Topic of the Week or quarterly news.


Enter your email to receive NTSAD's Topic of the Week or quarterly news.


Enter your email to receive NTSAD's Topic of the Week or quarterly news.