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Families find support and insight from NTSAD staff, parents, and presenters helpful. The NTSAD community checks in on each other, sends words of encouragement, and shares information.

Someone I love is newly diagnosed, now what?

A diagnosis of Tay-Sachs, Sandhoff, GM-1 or Canavan in any form is overwhelming. You have come to the right place. NTSAD is here to help you every step of the way.

Infantile & Juvenile
        Tay-Sachs, Canavan, Sandhoff and GM-1

Late Onset
        Tay-Sachs, Sandhoff and GM-1


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The Diseases

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Infantile & Juvenile
Tay-Sachs, Canavan, Sandhoff, GM-1

Newly Diagnosed
What to Expect
Symptom Management
Special Equipment
Services
Palliative & Hospice Care
Making Memories
Coping
Ways to Help
Grief
Preparing for the Unthinkable

Late Onset
Tay-Sachs, Sandhoff, GM-1

Newly Diagnosed
Communication Skills
Swallowing Difficulties
Employment
Housing
Mental Health
Mobility

Research

Potential Therapies
Overview
Gene Therapy
Stem Cell
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Stop-Codon Read Through
Acetate Supplement
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