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Leading the Fight
to treat and cure Tay-Sachs, Canavan and related diseasesdonate button

The DiseasesFind SupportResearchHelp PreventGet Involved

Make a Gift

Your gift enables NTSAD to:

  • Fund research
  • Provide support through our programs and services
  • Build awareness about Tay-Sachs, Canavan and related genetic diseases
  • Educate communities about prevention


Make a difference in the lives of those affected by Tay-Sachs, Canavan or related genetic diseases.  NTSAD is a 501 (C ) 3 organization.

Online  Give Now!

By Check

Make your check payable to NTSAD and send to:

    NTSAD
    2001 Beacon Street, Suite 204
    Boston, MA 02135

By Telephone

Call NTSAD at (800) 906-8723, to make a gift Monday - Friday, 9am-5pm Eastern Time.  An NTSAD associate will record your credit card information and answer your questions.

Memorial or tribute gifts

Honor a special person or occasion while contributing to our mission. You can also use this program to raise money by asking others to give to NTSAD in lieu of gifts for birthdays, graduations, weddings, anniversaries, and other important occasions.

Matching Gifts

Increase your gift through your employer’s matching gift program.  Check with your employer and submit the form with your gift to NTSAD.

Combined Federal Campaign/United Way

Designate a portion of your paycheck to be donated to NTSAD through the Combined Federal Campaign or United Way. Our CFC number is #11528.

Gift of Stock

Donate a gift of stock or other securities to NTSAD.  For more information or to transfer a gift of stock, contact the office at (800) 906-8723.

GoodSearch.com and iGive.com

Shop and support NTSAD by using these incredible portals to discounts, deals and convenience! Hundreds of dollars have been raised by shoppers around the country. Visit GoodSearch.com and iGive.com.

Establish a Family Fund

Families can establish a special restricted fund within National Tay-Sachs & Allied Diseases Association, Inc. (NTSAD) to honor the life of an individual through ongoing support of the mission of NTSAD. Activities of the fund can benefit specific programs of NTSAD from Research, Family Support and the overall health of the organization.

Contact Susan Kahn, Executive Director, for more information by calling (800) 906-8723.

Get Involved

  • Make a Gift
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  • Raise Awareness
  • Keeping Up with NTSAD eNews
  • Past Events
  • Event Photo Gallery

Meet Ronan


He’s 18 months old. So many milestones ahead – first steps, first words, first day of school. But now those dreams are gone. Ronan has Tay-Sachs.

Families like Ronan's need your help. Learn more.

Contact

National Tay-Sachs & Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135

info@ntsad.org
800-906-8723 phone
617-277-0134 fax

Adopt a Sheep

Help fund the research to perform gene therapy studies in a number of Tay-Sachs Jacob sheep! Name a sheep for $1,000 or participate in the Adopt-A-Sheep program.  Read more about these invaluable Jacob sheep.

How Your Gift Helps

$25
materials to raise awareness

$50
family membership to NTSAD

$285
registration to the NTSAD Family Conference

$1,000
one issue of Lifeline family newsletter

"We would do anything to not have to go through this. And that is why we work so hard on fundraising and spreading the word. We don't want others to go through this." - Kerri Rochman

Sign Up for Email News

Sign up for NTSAD's Topic of the Week or quarterly news.
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The Diseases

Tay Sachs
Canavan
Sandhoff
GM-1
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Leukodystrophies
Lysosomal Storage
Allied Diseases
About Inheritance

Find Support

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Infantile & Juvenile
Tay-Sachs, Canavan, Sandhoff, GM-1

Newly Diagnosed
What to Expect
Symptom Management
Special Equipment
Services
Palliative & Hospice Care
Making Memories
Coping
Ways to Help
Grief
Preparing for the Unthinkable

Late Onset
Tay-Sachs, Sandhoff, GM-1

Newly Diagnosed
Communication Skills
Swallowing Difficulties
Employment
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Mental Health
Mobility

Research

Potential Therapies
Overview
Gene Therapy
Stem Cell
Pharmacological Chaperone
Substrate Inhibition
Enzyme Replacement
Bone Marrow Transplant
Stop-Codon Read Through
Acetate Supplement
Biomarkers
Natural History Study
Evaluating Experimental Therapies

Research We Fund
The Research Initiative
NTSAD Research Strategy
Journey to a Cure
Tay-Sachs Gene Therapy Consortium
2011 Grants
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Lysosomal Storage Disease
Research Consortium


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Carrier Testing
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International Quality Control Program

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