Leading the Fight to treatand cure Tay-Sachs, Canavan and related diseases
Friends and family often struggle to find ways to be helpful, supportive and understanding. The most important way to be supportive is simply to be there. Caring for an affected child is extremely time-consuming and emotional and physically draining. It can be difficult for the parents to reach out and effectively communicate their needs. Be proactive and reach out to them!
Also see Gift Ideas
Donâ€™t say anything â€“ just LISTEN! Ohhh...unhuh...hmmmI donâ€™t know what to sayI wish I could say/do something to ease your heartache Repeat back what youâ€™ve heard: Sounds like you are feeling very angry, depressed, alone, frustrated, overwhelmed etc.
I understand what you are going throughCompare experiencesCheery platitudes: silver lining, everything happens for a reason etc.
National Tay-Sachs & Allied Diseases Association2001 Beacon StreetSuite 204Boston, MA 02135
firstname.lastname@example.org(617) 277-4463 phone(617) 277-0134 fax
Meet Rachaeli Fier, diagnosed with Tay-Sachs disease. Read her story
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