Leading the Fight to treatand cure Tay-Sachs, Canavan and related diseases
Not every child will need / use all the equipment listed below. These are options available to you to help manage the symptoms and promote comfort but may not fit into your family’s Philosophy of Care.
For details and photographs, select a category.
Suction Machine - for secretionsNebulizer - for delivery of medicationVest® System - to clear airways
Cough Assist - for secretions
Oxygen Concentrator & Portable Tanks - for therapeutic oxygen
Tumble Forms - soft foam support
Stander - an adjustable standing aid
Specialized Stroller - providing more support optionsBath Chair - for safety
Pulse Oximeter - to monitor oxygen levels.
Apnea Monitor - to measures how well your child breathes while sleeping.
Feeding Pump (if using g-tube) - to deliver formula or liquid
National Tay-Sachs & Allied Diseases Association2001 Beacon StreetSuite 204Boston, MA 02135
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