Leading the Fight to treatand cure Tay-Sachs, Canavan and related diseases
Not every child will need / use all the equipment listed below. These are options available to you to help manage the symptoms and promote comfort but may not fit into your familyâ€™s Philosophy of Care.
For details and photographs, select a category.
Suction Machine - for secretionsNebulizer - for delivery of medicationVestÂ® System - to clear airways
Cough Assist - for secretions
Oxygen Concentrator & Portable Tanks - for therapeutic oxygen
Tumble Forms - soft foam support
Stander - an adjustable standing aid
Specialized Stroller - providing more support optionsBath Chair - for safety
Pulse Oximeter - to monitor oxygen levels.Â
Apnea Monitor - to measures how well your child breathes while sleeping.
Feeding Pump (if using g-tube) - to deliver formula or liquid
National Tay-Sachs & Allied Diseases Association2001 Beacon StreetSuite 204Boston, MA 02135
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