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Special Equipment

Not every child will need / use all the equipment listed below. These are options available to you to help manage the symptoms and promote comfort but may not fit into your family’s Philosophy of Care.

For details and photographs, select a category.

 Respiratory Equipment

Suction Machine - for secretions

Nebulizer - for delivery of medication

Vest® System - to clear airways

Cough Assist - for secretions

Oxygen Concentrator & Portable Tanks - for therapeutic oxygen

 Positioning Equipment

Tumble Forms - soft foam support

Stander - an adjustable standing aid

Hospital bed

Specialized Stroller - providing more support options

Bath Chair - for safety

 Other

Pulse Oximeter - to monitor oxygen levels. 

Apnea Monitor - to measures how well your child breathes while sleeping.

Feeding Pump (if using g-tube) - to deliver formula or liquid

Infantile & Juvenile Support

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      • Infantile
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  • Late Onset Support
  • Meet the FamiliesMeet the Families

Contact

National Tay-Sachs & Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135

info@ntsad.org
800-906-8723 phone
617-277-0134 fax

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Infantile & Juvenile
Tay-Sachs, Canavan, Sandhoff, GM-1

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