Services such as speech therapy to promote safe eating, physical therapy to promote muscle tone and comfort and nursing to monitor for signs of respiratory infection or other issues are wonderful ways to provide comfort and manage symptoms.
This section will help you understand resources for getting services, what to expect working with in-home health care professionals and if transitioning to school based services is the right choice for your child and family.

Meet Vanessa Sanchez, diagnosed with Metachromatic Leukodystrophy disease. Read her story
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