Leading the Fight to treat and cure
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases


Services for
Tay-Sachs, Sandhoff, GM1, Canavan and related diseases

Services are wonderful ways to provide comfort and manage symptoms. These include:

  • speech therapy to promote safe eating
  • physical therapy to promote muscle tone and comfort
  • nursing to monitor for signs of respiratory infection or other issues

This section will describe resources for getting services, what to expect working with in-home health care professionals and if transitioning to school based services is the right choice for your child and family.

In Home Services

Early Intervention & Beyond

Getting Outside Help


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