Leading the Fight to treatand cure Tay-Sachs, Canavan and related diseases
Services such as speech therapy to promote safe eating, physical therapy to promote muscle tone and comfort and nursing to monitor for signs of respiratory infection or other issues are wonderful ways to provide comfort and manage symptoms.
This section will help you understand resources for getting services, what to expect working with in-home health care professionals and if transitioning to school based services is the right choice for your child and family.
Early Intervention and beyond
Getting Outside Help
National Tay-Sachs & Allied Diseases Association2001 Beacon StreetSuite 204Boston, MA 02135
firstname.lastname@example.org(617) 277-4463 phone(617) 277-0134 fax
Meet Vanessa Sanchez, diagnosed with Metachromatic
Leukodystrophy disease. Read her story
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