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Leading the Fight
to treat and cure Tay-Sachs, Canavan and related diseasesdonate button

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Become A Member

Supporting You and Your Family

We are dedicated to Finding a Cure and Caring for Families. Learning your child or grandchild, someone you love was diagnosed with Tay-Sachs, Sandhoff, GM-1 or Canavan was the worst day of your life. NTSAD understands and is here for your family every step of the way.

Membership Benefits

  • Help you understand the diagnosis & symptom management options
  • Keep you updated on the latest research developments
  • And most importantly, connect you with other families that truly understand!

First Year Free

The Annual Membership Contribution is waived for the first year to give new families a chance to ‘test drive’ the organization. We ask for an annual membership contribution of $50 but will accept a donation of any amount or waive the dues entirely. Our top priority is being there for all affected families, regardless of ability to contribute.

Privacy

All your information is kept strictly confidential. We will only share your information with other members of the Peer Support Group.

We are like a family – not one you’d ever choose to be part of but one that is there when needed most.

Join Today

To join, complete the online alt Request Form.

Infantile & Juvenile Support

  • Infantile & Juvenile Support
    • Newly Diagnosed
      • First Steps
      • Philosophy of Care
      • Free Info Packet
      • Register for Research
      • Become a Member
    • What to Expect
      • Infantile
      • Juvenile
      • Canavan
    • Symptom Management
    • Special Equipment
      • Respiratory
      • Positioning
      • Other
    • Services
      • In Home Services
      • Early Intervention & Beyond
      • Getting Outside Help
    • Palliative & Hospice Care
      • Palliative
      • Hospice
      • About Insurance
    • Making Memories
    • Coping
      • Taking Care of YOU
      • Siblings
    • Ways to Help
      • Gift Ideas
    • Grief
    • Preparing for the Unthinkable
  • Late Onset Support
  • Meet the Families

Meet Carmen Coddington

Meet Carmen Coddington, diagnosed with Tay-Sachs disease. Read her story

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Contact

National Tay-Sachs & Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135

info@ntsad.org
800-906-8723 phone
617-277-0134 fax

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The Diseases

Tay Sachs
Canavan
Sandhoff
GM-1
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Leukodystrophies
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Allied Diseases
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Find Support

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Infantile & Juvenile
Tay-Sachs, Canavan, Sandhoff, GM-1

Newly Diagnosed
What to Expect
Symptom Management
Special Equipment
Services
Palliative & Hospice Care
Making Memories
Coping
Ways to Help
Grief
Preparing for the Unthinkable

Late Onset
Tay-Sachs, Sandhoff, GM-1

Newly Diagnosed
Communication Skills
Swallowing Difficulties
Employment
Housing
Mental Health
Mobility

Research

Potential Therapies
Overview
Gene Therapy
Stem Cell
Pharmacological Chaperone
Substrate Inhibition
Enzyme Replacement
Bone Marrow Transplant
Stop-Codon Read Through
Acetate Supplement
Biomarkers
Natural History Study
Evaluating Experimental Therapies

Research We Fund
The Research Initiative
NTSAD Research Strategy
Journey to a Cure
Tay-Sachs Gene Therapy Consortium
2011 Grants
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Lysosomal Storage Disease
Research Consortium


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