Leading the Fight to treatand cure Tay-Sachs, Canavan and related diseases
My child, grandchild or someone I love has just been diagnosed with Classic Infantile or Juvenile Tay-Sachs, Sandhoff, GM-1 or Canavan; now what? Take a deep breath and know that you’ve come to the right place. The day you received the diagnosis might have been the worst day of your life. We understand! You are not alone! NTSAD is dedicated to finding a cure & caring for families.We can help you:
National Tay-Sachs & Allied Diseases Association2001 Beacon StreetSuite 204Boston, MA 02135
firstname.lastname@example.org(617) 277-4463 phone(617) 277-0134 fax
Director of Family Services
My name is Kim Kubilus and I am available to help you in any way I can. I lost two brothers to a lysosomal disease related to Tay-Sachs. If I can help ease the heartache of another, then maybe my family’s loss was not in vain.
Please feel free to contact me anytime with any question or just to talk. I may not know the answer but I’ll do my best to find it. My email is Kim@ntsad.org or 800.906.8723.
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