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Leading the Fight
to treat and cure Tay-Sachs, Canavan and related diseasesdonate button

The DiseasesFind SupportResearchHelp PreventGet Involved


 

NTSAD depends on donations, grants and community involvement to:
•    Fund research
•    Provide support through our programs and services
•    Build awareness about Tay-Sachs, Canavan and related genetic diseases
•    Educate communities about prevention

Make a difference in the lives of those affected by Tay-Sachs, Canavan or related genetic diseases.

How Your Gift Helps

$25 provides materials to raise awareness
$50 provides membership for one family
$285 provides registration to the NTSAD Family Conference
$1,000 provides funds to publish one issue of Lifeline family newsletter

How Can I Help?

Make a Gift

Make a gift online, by phone, check or credit card.  Make a gift in honor of or in memory of a loved one.  Learn more about stock donations and other ways to give.

 Attend an Event

Support our incredible NTSAD families and friends as they raise awareness and funds to put a stop to these diseases! 

Fundraising

Organize an event to help raise awareness and funds. NTSAD is here to help guide you through the steps.

Volunteer

Learn how giving your time and energy can be an effective way to make change in the lives of individuals living with the reality of these diseases.

Advocate

Follow how change can be made by supporting legislation that affects NTSAD and the rare genetic disease community.

Raise Awareness

Read how you can easily raise awareness in your community about Tay-Sachs, Canavan, and related genetic diseases.

The Organization

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The Diseases

Tay Sachs
Canavan
Sandhoff
GM-1
Other

Leukodystrophies
Lysosomal Storage
Allied Diseases
About Inheritance

Find Support

Annual Family Conference
Become a Member
Free Info Packet
Meet the Families
Register for Research

Infantile & Juvenile
Tay-Sachs, Canavan, Sandhoff, GM-1

Newly Diagnosed
What to Expect
Symptom Management
Special Equipment
Services
Palliative & Hospice Care
Making Memories
Coping
Ways to Help
Grief
Preparing for the Unthinkable

Late Onset
Tay-Sachs, Sandhoff, GM-1

Newly Diagnosed
Communication Skills
Swallowing Difficulties
Employment
Housing
Mental Health
Mobility

Research

Potential Therapies
Overview
Gene Therapy
Stem Cell
Pharmacological Chaperone
Substrate Inhibition
Enzyme Replacement
Bone Marrow Transplant
Stop-Codon Read Through
Acetate Supplement
Biomarkers
Natural History Study
Evaluating Experimental Therapies

Research We Fund
The Research Initiative
NTSAD Research Strategy
Journey to a Cure
Tay-Sachs Gene Therapy Consortium
2011 Grants
2010 Grants
Past Grants
Lysosomal Storage Disease
Research Consortium


Apply for a Grant
Clinical Trials
Scientific Meetings
Donating Tissue

Help Prevent

Carrier Testing
Types of Screening
Jewish Diseases
Tay-Sachs Disease
Prenatal
Screening Centers
Insurance
Education
Family Planning
Genetic Counseling
International Quality Control Program

Get Involved

Donate
Make a Gift
Events
Fundraising Ideas
Volunteer
Advocate
Raise Awareness
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