Leading the Fight to treatand cure Tay-Sachs, Canavan and related diseases
Our families’ daily struggles drive us to extend our leadership in and financial support of the research that will ultimately lead to a cure. Now more than ever, the potential exists to advance science toward effective treatments.
NTSAD launched its Research Initiative in 2002 to focus on funding promising innovative research for neurodegenerative diseases that affect the
central nervous system. We fund promising research that may lead to major grant support and programs that will hopefully lead to clinical trials.
NTSAD’s grants are sometimes made in collaboration with partners such as the NIH and other patient advocacy groups for the allied diseases. Forty-one grants (.pdf) have been awarded through our Research Initiative program and another 13 grants (.pdf) through the Lysosomal Storage Disease Research Consortium. These grants went on to receive over $10 million in funding through NIH!
The Tay-Sachs Gene Therapy Consortium is the most advanced research program and holds tremendous potential as they get closer to initiating a human clinical trial.
We can only fund research with the generous financial support of our families, affiliates and chapters. We encourage you to support this research by making a gift.
National Tay-Sachs & Allied Diseases Association2001 Beacon StreetSuite 204Boston, MA 02135
firstname.lastname@example.org(617) 277-4463 phone(617) 277-0134 fax
At NTSAD, we are making a difference. Every day. Helping families and individuals find their way and providing hope by supporting research on many levels. All of this takes compassion and determination.
There is no time to waste, and families need our help. Those who are fighting today and those who will seek our help tomorrow.
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