• Home
  • About
  • News
  • Shop
  • Library
  • Events
  • Contact
  • Search
  • Members

Leading the Fight
to treat and cure Tay-Sachs, Canavan and related diseasesdonate button

The DiseasesFind SupportResearchHelp PreventGet Involved


Text to Donate Hope




When you text “RARE” to 85944 you make a gift of $10 to NTSAD.

Thanks to their generosity, The EveryLife Foundation for Rare Diseases will match the gifts raised in December up to $1,000. 

Our goal is to raise at least $5,000 with this Text-to-Donate campaign.

100% of the proceeds from December will support the Helping Hand Grant Fund of NTSAD.

The Helping Hand Grant Fund provides financial aid to families-in-need for the NTSAD Annual Family Conference. It is the one time of the year where they find support and connect with new and old friends without judgment. Sessions provide them with the tools to manage every stage of these diseases - from diagnosis to caring for their loved one.

Your $10 gift will make a difference to families and individuals who already have so much to worry about.

To show our appreciation to the EveryLife Foundation for Rare Diseases, we ask you to please “LIKE” their “EveryLife Foundation for Rare Diseases” on Facebook. 

Get Involved

  • Make a Gift
  • Events
    • 2011 Year-end Appeal
    • Text to Donate
    • Annual Family Conference
  • Fundraising Ideas
  • Volunteer
  • Advocate
  • Raise Awareness
  • Keeping Up with NTSAD eNews
  • Past Events

The Organization

Home
About NTSAD
Mission & Vision
Board of Directors
Staff & Profiles
Chapters & Affiliates
Scientific Advisory Committee
Financials
Our History

News
Library Documents
Glossary
Contact
Search
Member Login


The Diseases

Tay Sachs
Canavan
Sandhoff
GM-1
Other

Leukodystrophies
Lysosomal Storage
Allied Diseases
About Inheritance

Find Support

Annual Family Conference
Become a Member
Free Info Packet
Meet the Families
Register for Research

Infantile & Juvenile
Tay-Sachs, Canavan, Sandhoff, GM-1

Newly Diagnosed
What to Expect
Symptom Management
Special Equipment
Services
Palliative & Hospice Care
Making Memories
Coping
Ways to Help
Grief
Preparing for the Unthinkable

Late Onset
Tay-Sachs, Sandhoff, GM-1

Newly Diagnosed
Communication Skills
Swallowing Difficulties
Employment
Housing
Mental Health
Mobility

Research

Potential Therapies
Overview
Gene Therapy
Stem Cell
Pharmacological Chaperone
Substrate Inhibition
Enzyme Replacement
Bone Marrow Transplant
Stop-Codon Read Through
Acetate Supplement
Biomarkers
Natural History Study
Evaluating Experimental Therapies

Research We Fund
The Research Initiative
NTSAD Research Strategy
Journey to a Cure
Tay-Sachs Gene Therapy Consortium
2011 Grants
2010 Grants
Past Grants
Lysosomal Storage Disease
Research Consortium


Apply for a Grant
Clinical Trials
Scientific Meetings
Donating Tissue

Help Prevent

Carrier Testing
Types of Screening
Jewish Diseases
Tay-Sachs Disease
Prenatal
Screening Centers
Insurance
Education
Family Planning
Genetic Counseling
International Quality Control Program

Get Involved

Donate
Make a Gift
Events
Fundraising Ideas
Day of Hope
Volunteer
Advocate
Raise Awareness
© National Tay-Sachs & Allied Diseases. All rights reserved. Scroll To Top