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Leading the Fight
to treat and cure Tay-Sachs, Canavan and related diseasesdonate button

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Meet Ronan.

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He’s 18 months old. So many milestones ahead – first steps, first words, first day of school. But now those dreams are gone.

Ronan has Tay-Sachs.

Ronan’s parents, Emily and Rick, are not alone. The NTSAD community has embraced them with compassion and understanding. NTSAD excels at giving families and individuals struggling with Tay-Sachs, Canavan and related diseases the resources they need to cope daily.

Families like Ronan’s continue to need your help. They face enormous challenges with these rare diseases, and hope makes a big difference. Today, due to promising research results, NTSAD families can actually see hope on the horizon.  

With your generous gift, NTSAD can reach our goals to:

  • Accelerate human clinical trials for a promising treatment by late 2012; we’re on our way, raising nearly half a million dollars this year for research programs.
  • Expand our family services program to accommodate the growing number of families who need our help.
  • Further develop our partnerships to raise awareness and increase public outreach.


Make a gift to NTSAD today, to support children and their families,
including Emily, Rick and Ronan.

Your gift, big or small, will have a profound impact on Ronan’s family and many others.

Listen to Emily share her moving story on NPR's "Talk of the Nation" and hear first-hand
about her experience as a mom of a terminally ill child.

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The Diseases

Tay Sachs
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Leukodystrophies
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Infantile & Juvenile
Tay-Sachs, Canavan, Sandhoff, GM-1

Newly Diagnosed
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Tay-Sachs, Sandhoff, GM-1

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