NTSAD’s Affiliates and Chapters have their own programs and help fund research, family support and educational initiatives offered by the national organization.
New York Area Chapter:
www.ntsad-ny.org
Mission: Education & carrier screening for prevention, research for treatment and cure, family services, advocacy
Marion Yanovsky, Co-President
Shari Ungerleider, Co-President
Delaware Valley Chapter:
www.tay-sachs.org
Mission: The elimination of Tay-Sachs and Canavan diseases through education and screening
Michael J. Ossip, Co-President
Lauri Sussman Siegel, Co-President
Rebecca Tantala, Executive Director
Cameron & Hayden Lord Foundation:
www.lordfoundation.org
Mission: (1) Decrease the incidence of chronic and complex childhood diseases, and (2) Increase the quality of emotional, spiritual and medical care for families facing these diseases.
Alison Lord, President
Mathew Forbes Romer Foundation:
www.mfrfoundation.org
Mission: Promote and lead critical awareness, testing, counseling and research initiatives that hold promise for the prevention and eventual care of fatal children’s genetic diseases of the brain.
Kevin Romer, President
