Leading the Fight to treatand cure Tay-Sachs, Canavan and related diseases
NTSADâ€™s Affiliates and Chapters have their own programs and help fund research, family support and educational initiatives offered by the national organization.
New York Area Chapter: www.ntsad-ny.org
Mission:Â Education & carrier screening for prevention, research for treatment and cure, family services, advocacy
Â Â Â Â Â Â Â Â Â Â Â Marion Yanovsky, Co-PresidentÂ Â Â Â Â Â Â Â Â Â Â Â Shari Ungerleider, Co-President Delaware Valley Chapter: www.tay-sachs.org
Mission: The elimination of Tay-Sachs and Canavan diseases through education and screening
Michael J. Ossip, Co-President Lauri Sussman Siegel, Co-President Rebecca Tantala, Executive Director
Cameron & Hayden Lord Foundation: www.lordfoundation.org
Mission: (1) Decrease the incidence of chronic and complex childhood diseases, and (2) Increase the quality of emotional, spiritual and medical care for families facing these diseases.
Alison Lord, PresidentÂ Â
Mathew Forbes Romer Foundation: www.mfrfoundation.org
Mission: Promote and lead critical awareness, testing, counseling and research initiatives that hold promise for the prevention and eventual care of fatal childrenâ€™s genetic diseases of the brain.
Kevin Romer, President
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