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Leading the Fight
to treat and cure Tay-Sachs, Canavan and related diseasesdonate button

The DiseasesFind SupportResearchHelp PreventGet Involved

Screening Centers

Victor Centers in Boston, Miami and Philadelphia

Arizona

Jewish Genetic Diseases Center of Great Phoenix

Illinois

Chicago Center for Jewish Genetic Disorders
Also view listing of screening centers by state

Florida

Mathew Forbes Romer Foundation Annual Community Screening

New York

Mount Sinai Center for Jewish Genetic Diseases

Other Resources

Prepare for Your Future - A Young Couples Guide (.pdf)
2008 Genzyme GAUC-US-P088-04-09

National Society of Genetic Counselors
Visit www.nsgc.org

Jewish Genetic Disease Consortium
Visit www.jewishgeneticdiseases.org

Help Prevent

  • Carrier Screening
    • Types of Screening
      • Jewish Diseases
      • Tay-Sachs
      • Prenatal
    • Screening Centers
    • Insurance
  • Education Programs
  • Family Planning
    • Genetic Counseling
  • International Quality Control Program

Contact

National Tay-Sachs & Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA 02135

info@ntsad.org
800-906-8723 phone
617-277-0134 fax

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The Diseases

Tay Sachs
Canavan
Sandhoff
GM-1
Other

Leukodystrophies
Lysosomal Storage
Allied Diseases
About Inheritance

Find Support

Annual Family Conference
Become a Member
Free Info Packet
Meet the Families
Register for Research

Infantile & Juvenile
Tay-Sachs, Canavan, Sandhoff, GM-1

Newly Diagnosed
What to Expect
Symptom Management
Special Equipment
Services
Palliative & Hospice Care
Making Memories
Coping
Ways to Help
Grief
Preparing for the Unthinkable

Late Onset
Tay-Sachs, Sandhoff, GM-1

Newly Diagnosed
Communication Skills
Swallowing Difficulties
Employment
Housing
Mental Health
Mobility

Research

Potential Therapies
Overview
Gene Therapy
Stem Cell
Pharmacological Chaperone
Substrate Inhibition
Enzyme Replacement
Bone Marrow Transplant
Stop-Codon Read Through
Acetate Supplement
Biomarkers
Natural History Study
Evaluating Experimental Therapies

Research We Fund
The Research Initiative
NTSAD Research Strategy
Journey to a Cure
Tay-Sachs Gene Therapy Consortium
2011 Grants
2010 Grants
Past Grants
Lysosomal Storage Disease
Research Consortium


Apply for a Grant
Clinical Trials
Scientific Meetings
Donating Tissue

Help Prevent

Carrier Testing
Types of Screening
Jewish Diseases
Tay-Sachs Disease
Prenatal
Screening Centers
Insurance
Education
Family Planning
Genetic Counseling
International Quality Control Program

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