Leading the Fight to treatand cure Tay-Sachs, Canavan and related diseases
Despite position statements from the American College of Obstetricians and Gynecologists (ACOG) stating it is a basic standard of care to screen persons of French-Canadian, Louisiana-Cajun and Ashkenazi Jewish descent for Tay-Sachs, many health insurance companies do not cover genetic testing. NTSAD can help you appeal for coverage and at the same time educate the healthcare industry about the importance of genetic testing prior to conception.Â
If you are having problems with insurance covering your carrier test, please contact the office at 1-800-906-8723 or
It is important to note that while the appeal process and potential out-of-pocket cost of genetic testing may seem daunting, it is a drop in the bucket compared to caring for a child affected by Tay-Sachs, Canavan or another allied disease.
National Tay-Sachs & Allied Diseases Association2001 Beacon StreetSuite 204Boston, MA 02135
firstname.lastname@example.org(617) 277-4463 phone(617) 277-0134 fax
At NTSAD, we are making a difference. Every day. Helping families and individuals find their way and providing hope by supporting research on many levels. All of this takes compassion and determination.
There is no time to waste, and families need our help. Those who are fighting today and those who will seek our help tomorrow.
Make a Gift
HomeAbout NTSADMission & VisionBoard of DirectorsStaff & ProfilesChapters & AffiliatesScientific Advisory CommitteeFinancialsOur HistoryNewsLibrary DocumentsGlossaryContactSearch