Leading the Fight to treat and cure Tay-Sachs, Canavan and related diseases
Despite position statements from the American College of Obstetricians and Gynecologists (ACOG) stating it is a basic standard of care to screen persons of French-Canadian, Louisiana-Cajun and Ashkenazi Jewish descent for Tay-Sachs, many health insurance companies do not cover genetic testing. NTSAD can help you appeal for coverage and at the same time educate the healthcare industry about the importance of genetic testing prior to conception.
If you are having problems with insurance covering your carrier test, please contact the office at 1-800-906-8723 or
It is important to note that while the appeal process and potential out-of-pocket cost of genetic testing may seem daunting, it is a drop in the bucket compared to caring for a child affected by Tay-Sachs, Canavan or another allied disease.
National Tay-Sachs & Allied Diseases Association2001 Beacon StreetSuite 204Boston, MA 02135
firstname.lastname@example.org phone617-277-0134 fax
Make a Gift
HomeAbout NTSADMission & VisionBoard of DirectorsStaff & ProfilesChapters & AffiliatesScientific Advisory CommitteeFinancialsOur HistoryNewsLibrary DocumentsGlossaryContactSearchMember Login