Leading the Fight to treatand cure Tay-Sachs, Canavan and related diseases
There is no treatment or cure for Canavan disease but there are ways to manage symptoms. These range from life-extending interventions like a feeding tube to comfort measures like massage to promote relaxation.
Newly diagnosed families should read Finding Your Philosophy of Care, available through NTSAD. It will help parents develop a care plan and care goals to aid in major care choices. Another resource is the film, "Parenting a Child with Life-limiting Illness."
Data suggests lithium and other drugs may slow and even halt the progression of the disease in some patients. To learn more about these options please contact our Director of Family Services, Kim Kubilus at
National Tay-Sachs & Allied Diseases Association2001 Beacon StreetSuite 204Boston, MA 02135
firstname.lastname@example.org(617) 277-4463 phone(617) 277-0134 fax
Biotechnology Info www.ncbi.nlm.nih.gov
At NTSAD, we are making a difference. Every day. Helping families and individuals find their way and providing hope by supporting research on many levels. All of this takes compassion and determination.
There is no time to waste, and families need our help. Those who are fighting today and those who will seek our help tomorrow.
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