Leading the Fight to treat and cure
Tay-Sachs, Canavan and related diseases

Management of Canavan

There is no treatment or cure for Canavan disease but there are ways to manage symptoms.  These range from life-extending interventions like a feeding tube to comfort measures like massage to promote relaxation.

Newly diagnosed families should read Finding Your Philosophy of Care, available through NTSAD. It will help parents develop a care plan and care goals to aid in major care choices. Another resource is the film, Parenting a Child with Life-Limiting Illness.

Data suggests lithium and other drugs may slow and even halt the progression of the disease in some patients. To learn more about these options please contact our Director of Family Services, Kim Kubilus at This email address is being protected from spambots. You need JavaScript enabled to view it. or (800) 906-8723.

Canavan Review Article

Canavan disease was first described in 1931, and this review traces the progress made in the past 8 decades to understand the disease by enumerating current hypotheses and ongoing palliative measures to alleviate patient symptoms in the context of the latest advances in the field.

Read article: Making the White Matter Matters: Progress in Understanding Canavan’s Disease and Therapeutic Interventions Through Eight Decades, Seemin S. Ahmed • Guangping Gao




Enter your email to receive NTSAD's Topic of the Week or quarterly news.