NTSAD’s Research Initiative funds research that may lead to treatments for lysosomal storage diseases or leukodystrophies impacting the
central nervous system (CNS). NTSAD solicits proposals annually for innovative research projects that involve basic research, translational studies or clinical studies. Basic research and translational studies should generate strong preliminary data to enable future major funding.
All proposals are reviewed and evaluated by members of the NTSAD Scientific Advisory Committee and other qualified scientists. The final decision of award recipients is determined by the Research Initiative Committee of the NTSAD Board of Directors.
Funding for the grants comes from gifts to NTSAD’s Research Initiative from NTSAD’s chapters and affiliates as well as donations and fundraising events.
December, 2011 update: NTSAD will not issue an RFP for the coming year. Our commitment is to help drive the most promising research into human clinical trials. A decision was made, after consultation with NTSAD's Scientific Advisory Committee, that NTSAD should direct its new research grants toward the Tay-Sachs
Gene Therapy Consortium as they hope to start human clinical trials in one year.
NTSAD remains committed to supporting innovative research projects that involve basic research, translational studies or clinical studies in the areas of neurodegenerative disorders. In future years, our intent is to reinstitute our annual RFP process.
I hope you will stay in touch with us through the year. Please contact Sue Kahn (
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) if you wish to receive our weekly Topic of the Week e-news or our Keeping up with NTSAD quarterly e-news. Also, we will inform you of other grant opportunities that may be of interest to you.
For the full announcement, please click here.
