Dear Friends of NTSAD,
Thank you for visiting our website. We hope you find it to be a very valuable resource in your quest for knowledge and answers. 
When our son, Mathew was diagnosed with Tay-Sachs diseases in 1995, we turned to the NTSAD for support and hope. And while Mathew lost his battle with Tay-Sachs in 2003, NTSAD continues to be an essential part of our family's lives by providing a global network of affected families, scientists, caregivers, students, teachers, healthcare professionals, and many others who share the common vision of a future free of Tay-Sachs, Canavan, and over 100 allied diseases.
So join us on a virtual tour of the NTSAD mission. It spans research to develop treatments and cures, comprehensive support services for affected families and individuals, prevention, education, awareness and screening through grassroots collaborations with chapters and affiliates, and advocacy efforts as the recognized authority for this family of genetic diseases.
We are committed to continuing to improve the content and format of our website and welcome your feedback and inputs. Please let our staff, board and me know what we can do to improve the effectiveness of our information portal.
Sincerely,
Kevin Romer
President
