Topics of the Week - Archive

September 9, 2007

Thought of the Week

It's never too late to be who you might have been.
-- George Eliot

NTSAD Warmly Welcomes New Executive Director, Susan R. Kahn!!

NTSAD is thrilled to welcome Susan R. Kahn to the NTSAD family as the new executive director! Prior to joining NTSAD, she worked at medical diagnostics and biotech companies in various finance, management and business development roles. Most recently she worked at Genzyme Genetics where she developed an appreciation for the vital importance of quality testing and the impact on the family.

Sue also has extensive volunteer experience with community based organizations, which inspired her to move into the non-profit sector for the next phase of her career. She feels honored to join an organization with such dedicated members, staff, board and donors to support families and individuals facing obstacles un-imaginable to most.

Sue is eager to connect with you to learn more about your experience with NTSAD; please welcome Sue to the fight against Tay-Sachs, Canavan and all the allied diseases at 800-906-8723 or skahn@ntsad.org .

Still time to support the Helping Hand Grant Cookbook!

Haven't submitted a recipe yet? We've extended the deadline to Monday so you have all weekend to share your favorite recipe with the NTSAD Family.

Two easy options are available to suit your needs:

Email Lisa Wivell at lisawivell@yahoo.com with ‘Cookbook' in the subject line to request a contributor username and password. Lisa will add you as a contributor to the Helping Hand Cookbook and then Heritage Cookbooks (our premier vendor) will send you a user name and password which allows you to add and edit recipes through Monday, September 10 th .

Fax: 610-593-4782

Top Chef Sponsors Needed!!

We only have 2 Top Chef Sponsors and up to 10 are available! Top Chef Sponsors are provided a color section tab which may be used to share a family photo, a warm greeting to NTSAD or company logo for only $750. Lower sponsor levels are also available.

Remember, all the funds raised go directly to help families in financial need attend the Annual Family Conference. To meet our printing deadline we need all sponsorships must be in place by Friday, September 14 th .

Please send sponsorships to:

NTSAD Helping Hand Cookbook
2001 Beacon Street, Suite 204
Boston , MA 02135

Personal check, MasterCard or Visa accepted. Payment may also be made through PayPal which accepts all major credit cards.

Please, remember that you can call the office and speak with Diana or Kim with any concerns,
questions or suggestions - our door is always open!

Diana Pangonis
Interim Executive Director
Diana@ntsad.org
800-906-8723