Topics of the Week - Archive

June 15, 2007

Happy Father’s Day! The dads of NTSAD are truly a remarkable group of men. In addition to caring for affected and healthy children they are often the primary bread-winner and must miss precious time with their children to make sure there is food on the table and a roof over their heads. We salute you!

Thought of the Week

I cannot think of any need in childhood as strong as the need for a father's protection.
-- Sigmund Freud

Research

The Cure Tay-Sachs project on the American Express Members Project is doing very well! But the ratings and comments must continue to remain in the top 50 by the Sunday June 17th deadline for a chance at receiving up to $5 MILLION dollars for research!

Visit www.membersproject.com today and search for project 3504 in the upper right hand corner search box. Rate the Cure Tay-Sachs project and post why curing Tay-Sachs is important to you, only American Express cardholders may vote. Starting July 3 rd you can vote for your favorite project. Together we can make this happen! Be sure to let your friends and family know about this great opportunity!

Another Way to Support NTSAD…Equipment Swap!

Recently NTSAD has received numerous requests for equipment and medical supplies. If you have any of the following please contact the national office ASAP at 800-906-8723 or Info@ntsad.org . Remember, all in-kind donations are tax-deductible!

Bathtub lift for getting a large affected child in/out of tub
#18 mickey button and connection set
Feeding bag(s) for the Kangaroo pump
Syringes to aspirate
1000ml or 500ml feeding bags
Teeth cleaning kit
Nutriben with fiber
Portable suction machine

Office Wish List

Photos and stories of families and individuals with any allied disease for publications, website,
public speaking and other presentations.
Airfare or travel ‘awards' for staff to travel to professional meetings
Laptop for staff to use during off site meetings and presentations
Office supplies: white and color paper, large 9 x 12 flat envelopes, Avery 5160 mailing labels.

Please, remember that you can call the office and speak with Diana or Kim with any concerns,
questions or suggestions - our door is always open!

Diana Pangonis
Interim Executive Director
Diana@ntsad.org
800-906-8723