NTSAD Research Initiative

Purpose

NTSAD’s Research Initiative strives to:

• clearly communicate disease-related research developments
• provide networking for basic and clinical scientists focused on our disorders
  and funding organizations
• galvanize the lysosomal storage and leukodystrophy diseases community.

NTSAD seeks to define the relevant research by understanding and communicating research already underway, by promoting the viability of current research, and by securing public and private sources of research funding.

The Research Initiative Committee is a network of committed and passionate people directly affected by lysosomal storage and leukodystrophy diseases dedicated to raising the funds necessary to vigorously pursue treatments and ultimately cure these devastating diseases.

NTSAD established the Scientific Advisory Research Evaluation Subcommittee to liaison to the scientific community in order to assess current research developments and advise the Research Initiative Committee on the leading scientific efforts. Together these committees endeavor to unite and motivate scientific and philanthropic leaders from around the world.

NTSAD solicits proposals for innovative research projects that should generate strong preliminary data for major funding in the area of genetic neurodegenerative disorders and, in partnership with other organizations or as part of a larger consortium, the Research Initiative funds research that can lead to novel treatments for lysosomal or leukodystrophy diseases impacting the central nervous system. Click here for a sample RFP.