NTSAD Chapters & Affiliates

The local Affiliates and Chapters of NTSAD are dedicated to the treatment and prevention of Tay-Sachs, Canavan and other related diseases, and to provide information and support services to individuals and families affected by these diseases, as well as the public at large. Strategies for achieving these goals include public and professional education, research, genetic screening, family services and advocacy.

Please note the Canadian Association for Tay-Sachs & the Allied Diseases (CATSAD) provides support services for families and individuals in Canada. All other support services are administered through the national office. Listed here are each of our Chapters, their Presidents and how to contact them.

For additional information please contact our National Office staff.

CANADA (CATSAD):

Bob Gagne, President
E-mail: info@catsad.ca

Affiliate Staff
Maureen Dillon, Administrative Director
Canadian Association for Tay-Sachs & the Allied Diseases (CATSAD)
Box No. 80043
Appleby Postal Outlet
Burlington, ON L7L 6B1
(905) 634-4101
E-mail: Maureen@catsd.ca

Website: http://www.catsad.ca/

DELAWARE VALLEY:

Lauri Sussman Siegel, President
E-mail: lsiegel@sussmanauto.com

Chapter Staff
Rebecca Hunt Tantala, Exec. Director
NTSAD Delaware Valley
720 Greenwood Avenue, Suite 203
Jenkintown, PA 19046
(215) 887-0877
(215) 887-1931 (Fax)
E-mail: ntsad@aol.com

Website: www.tay-sachs.org

DYLAN JAMES MANNING FOUNDATION:

Sherri Manning, President
E-mail: pittfan94@comcast.net

Brian Manning, Vice President
E-mail: brian_manning@qvc.com

Dylan James Manning Foundation, Affiliate of NTSAD
P.O. Box 1444
Exton, PA 19341
(610) 593-9930
(610) 593-4782 (FAX)
E-mail: justbelieveinangels@comcast.net

Website: www.djsfoundation.org

MATHEW FORBES ROMER FOUNDATION – NTSAD Member Organization

Kevin Romer, President
Mathew Forbes Romer Foundation, South Florida Affiliate of NTSAD
PMB#191
9858 Glades Rd. 191
Boca Raton, FL 33434
(561) 477-0337
(561) 477-0077 (Fax)
E-mail: MFRF@aol.com

Website: www.mfrfoundation.org

NEW YORK AREA:

Marion Yanovsky, Co-President
E-mail: marionyanov@aol.com

Stan Michelman, Co-President
E-mail: michelmans@aol.com

National Tay-Sachs & Allied Diseases Association – New York Area Chapter
1202 Lexington Avenue, #288
New York, NY 10028
(212) 431-0431; (888) 354-7788
(888) 354-4884 (Fax)
E-mail: info@ntsad-ny.org

Website: www.ntsad-ny.org