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Leading the Fight to treat and cure
Tay-Sachs, Canavan and related diseases

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  • Explore the support available for families coping with the diagnosis of these life-changing and often fatal genetic diseases.
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  • Learn about grants, research projects, and potential therapies for Tay-Sachs, Canavan, GM1, Sandhoff and the allied diseases.
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  • Awareness, prevention and fundraising can provide a brighter future for families and individuals affected by rare genetic diseases.
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  • The conference is a weekend of acceptance, helpful tools and access to research updates.
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  • Prevention is the only cure today. Know your risks. Be informed, be tested, be sure.
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  • Join the cause by attending or organizing an event to help raise awareness and funds.

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  • Tay-Sachs Disease
  • Canavan
  • Sandhoff Disease
  • GM-1
  • Other Allied Diseases
Tay-Sachs is a genetic disorder caused by the absence of beta-hexosaminidase (Hex-A). This missing enzyme causes cells to become damaged, resulting in progressive neurological disorders. Read More
Canavan is a progressive neurological genetic disorder caused by the absence of a vital enzyme known as aspartoacylase (ASPA). ASPA breaks N-acetylaspartate acid (NAA) into building blocks essential for building myelin. Read More
Sandhoff is a progressive neurological genetic disorder caused by the absence of a vital enzyme. It is one of over 50 genetically inherited disorders known as Lysosomal Storage Diseases. Read More
Gangliosidosis-1 (GM-1) is a progressive neurological genetic disorder caused by the absence of a vital enzyme. It is one of over 50 genetically inherited disorders known as Lysosomal Storage Diseases. Read More
The allied diseases under the NTSAD umbrella include over 50 lysosomal storage diseases and over 50 leukodystrophies. Read More

At  NTSAD, we provide family services, research, and education for Tay-Sachs, Canavan and allied diseases. Join our cause to wipe out these genetic diseases.

National Tay-Sachs & Allied Diseases Association (NTSAD)
2001 Beacon Street, Suite 204, Boston, Massachusetts 02135
(617) 277-4463 * (800) 90-NTSAD * This email address is being protected from spambots. You need JavaScript enabled to view it.

News

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    Sign Up for Email News Get updates delivered weekly to stay up-to-date on research, services for families, and upcoming events. Read More
  • 2014 Imagine & Believe: An Evening to Benefit NTSAD +

    Join us on November 13th for our Seventh Annual Boston Benefit! Read More
  • 2014 Day of Hope on September 20th +

    A Global Day to Rally and Raise Funds for Research Read More
  • $35,000 Postdoctoral Fellowship RFA +

    A terrific opportunity for a postdoctoral fellowship for Tay-Sachs, Sandhoff, GM-1 and Canavan diseases. Read More
  • NTSAD New York Area Chapter Transitions Administration to NTSAD +

    NTSAD's New York Chapter hands over administrative function to the national office after many years raising awareness and funds for Read More
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